|Posing for pictures just wore her out...|
One of the things I always thought about before I got pregnant and then of course when I was pregnant, was how we'd be able to share all the things that Tom and I enjoyed doing as kids with our baby. However, one thing that continually went through my mind right after we received her diagnosis and during many of the months that followed, was how things would be different from what we imagined.
During that time and those months, as I met and talked with other parents of kids with Down Syndrome, one of the sentiments most commonly shared was to never forget that she is just our baby first. The Down Syndrome is a part of her, but it doesn't define her.
It's definitely been difficult adjusting to many of the things that we've had to think differently about since she's been born. One of the other things we're also currently dealing with is how to plan for her future financially. We had planned on setting up her college fund right after she was born, but because we don't know what further education will mean for her, we can't take the chance of tying up her "college fund" in something that she can't use. We've decided to contact Gigi's to see if this is something that other parents are struggling with and seeing about setting up some type of seminar that can help all of us.
But as I've said so many times before, and I'll continue to say because it needs to be our focus; is that for right now, we just take it one day at a time. And for today, that meant sitting with our girl on the couch and watching her eyes just light up at the opening scene of Lion King on Blu Ray and telling her how much her daddy and I loved watching the movie (and still do). And how when she's a little older we'll take her to see it on stage, and despite the fact that many people aren't encouraging their 7 month old to watch tv, I'll proudly say we looked for cartoons to watch with her this morning and we'll finish watching Lion King with her (though it make take several nights).
|She's ready and waiting for Simba to make his appearance. And playing with Daddy's iPhone...|